Adapted from My RemARCs Facebook post on March 11, 2020.
There’s a lot of information going around right now about Coronavirus. Some of it’s good, some of it less so. As bad as the actual virus is however, I think there’s one bit of good that can come from it, or rather, be learned from it.
Right now—as Coronavirus is causing people to rethink vacations, visiting family, going to the movies or a concert, and even just leaving their house—the entire nation is getting a small taste of what those of us with compromised immune systems go through every day of our life.
We ALWAYS have to ask if someone coming to the family gathering is or has been sick.
We ALWAYS have to wonder who the last person to sit at our table at the restaurant was, or to touch the elevator button.
We ALWAYS have to wonder if the person right next to us is going to sneeze or cough.
You see, for us, every virus is Coronavirus. Every cold might be pneumonia. Every germ could be 2 weeks in the hospital. We have to treat it all as potentially life or death because it literally could be.
In fact, most people with Spinal Muscular Atrophy, or diseases like it, don’t die from their disease. They die from complications from a cold, virus, or infection that their bodies simply aren’t strong enough to fight off.
Now, that doesn’t mean that we live our lives in fear going around like Adrian Monk.
“It’s a jungle out there. Disorder and confusion everywhere. No one seem to care. Well I do. Hey, who’s in charge here? It’s a jungle out there. Poison in the very air we breathe. Do you know what’s in the water that you drink? Well I do, and it’s amazing. People think I’m crazy, ‘cause I worry all the time. If you paid attention, you’d be worried too. You better pay attention. Or this world we love so much might just kill you. I could be wrong now, but I don’t think so. ‘Cause it’s a jungle there.” -Theme song to the show “Monk” by Randy Newman
No, we try to live as normally as possible. We take precautions—all the ones that you’re taking now, and should be taking always. In the winter months and the height of flu season, we try to limit our exposure as much as possible and still have a life. The reality of the fear of getting something always remains in the back of our minds, though.
So as you go about your days, and you take your precautions, and as eventually a vaccine comes out and things start to get back to normal, think about us. Think about how we’re still practicing social distancing and we’re still wiping things down with antibacterial wipes. And maybe, think about continuing to do them yourselves. Because if everyone did, we could worry just a little bit less, we would be able to think about it a little bit less, and we could live a little more normally.
Well, those are my remARCs. I hope they in some way, big or small, might have resonated with you. Whether it made you laugh, cry (I hope not too much), smile, or maybe think about life from a different perspective, I hope you take something away from this article that makes your day even the slightest bit better. I’d love to hear your remARCs as well. Feel free to send me an email at firstname.lastname@example.org, or leave a comment on the My RemARCs Facebook, Twitter, or Instagram pages… unless you hated it. In which case, why are you even still reading this? Hope to see you back here soon. Until then, be well and live remARCably.